Some time ago, I've stopped making New Year's resolutions. I never seemed to follow through, always giving up on them after week 1. I've decided to pick up the habit again--this year making a resolution that I will stick to. This year, I intend to be fully active in the PCD world--raising awareness, helping to raise funds for research and communicating with other families. This is a resolution I will keep, I have to, for the sake of my 4 year old. I refuse to be the mom who watches her child's lungs become floppy or suffer irreversible damage because I didn't do enough or because there isn't enough funds for research.
Today is an important day for us and our battle with PCD. Today is our first meeting with the pulmonologist since Rylee's CT scan of her lungs. It should be at this appointment we'll get the results, making sure there isn't any permanent damage so far. I read stories of children with PCD having portions of their lungs removed after permanent damage and while a huge part of me thinks, this won't happen to my daughter, a little part of me realizes it isn't out of the realm of possibility. Twice that we know of, Rylee has suffered portions of her lung collapsing and it was a fight against time to get it to reopen. To our knowledge, they did, without any permanent damage.
So, for now we keep on going with daily treatments and therapies, doing all we can do to keep Rylee healthy and infection free!
Happy New Year to you all, sending happy and healthy thoughts for 2013 to you all!
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